She Strengthens

Breaking the Silence: Shining a Light on Hidradenitis Suppurativa

Imagine explaining a chronic condition to someone, only to be met with a puzzled expression and a question: “Hidra-what now?” This is the reality for many individuals living with hidradenitis suppurativa (HS), a condition that affects up to 4% of the global population. Despite its prevalence, HS remains shrouded in mystery, often misdiagnosed and misunderstood.

The Importance of Awareness

HS awareness week, taking place from June 7 to 12, 2021, presents an opportunity to educate others, dispel stigmas, and encourage those affected to seek medical attention. Early diagnosis is crucial in preventing disease progression, making awareness and advocacy vital components in the fight against HS.

Getting Involved

So, how can you make a difference? Start by reaching out to local media outlets, educating yourself and others through social media, and sharing personal experiences or stories from those who have been impacted by HS. Consider hosting a virtual fundraising event or participating in a charity walk/bike ride to raise funds for HS organizations.

HS Foundations and Charities: Leading the Charge

Several organizations are dedicated to providing resources, funding research, and promoting awareness about HS. Some notable organizations include:

• Hidradenitis Suppurativa Foundation (HSF)
• Canadian Hidradenitis Suppurativa Foundation (CHSF)
• The Hidradenitis Suppurativa Trust
• Hope for HS

Year-Round Advocacy

While awareness weeks are essential, advocacy for HS should be an ongoing effort. You can stay involved by posting about HS on social media, starting a blog or vlog, hosting online fundraisers, and engaging in conversations about the condition. Joining a support group, such as #HSGlobal or Hope for HS, can also provide a sense of community and solidarity with others who understand the challenges of living with HS.

The Power of Collective Action

Raising awareness about HS is crucial for driving research, improving care, and supporting those affected. By working together, we can break the silence surrounding this condition and bring hope to those who need it most.